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Twinslist.org Resources
Prematurity
This FAQ includes links to resources that support parents of premature infants. If you have a site that you'd like to see listed here, send a description and url address to twinfaqs@yahoo.com for
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Organizations
The Alexis Foundation
- Description:
- "Our mission is to assist parents, healthcare professionals and
the public in providing the best possible care for premature infants
and children." Preemie clothing, events, resources & additional
links.
- Website: http://pages.prodigy.net/thealexisfoundation/THEALEXIS1.html
The American Association for Premature Infants
- Description:
- The American Association for Premature Infants
(A.A.P.I.) is a national advocacy organization dedicated
to improving the quality of health, developmental and educational
services for premature infants, children and their families.
- Website: http://www.aapi-online.org/
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Online Resources
The Developmental Progress Clinic: Online Resource Center
- Description:
- The mission of the Developmental Progress Clinic is to provide multidisciplinary neurodevelopmental evaluation and intervention services to infants and children identified as “at-risk” for neurodevelopmental disabilities.
- Website: http://www.pediatrics.emory.edu/NEONATOLOGY/DPC/index.htm
The Early Edition
- Description:
- Preemie-L Newsletter (Online newsletter)
- Website: http://www.vicnet.net.au/~earlyed/welcome.htm
For Parents of Preemies Answers to Common Questions
- Description:
- Covers chances for survival/disability,
common diseases, preparing for discharge, questions after discharge,
emotional reactions of parents, understanding your preemie, later
problems, and references. Based out of University of Wisconsin and The
Center For Perinatal Care at Meriter Hospital Madison,
Wisconsin
- Website: http://www.pediatrics.wisc.edu/patientcare/preemies/
Preemie-L Discussion Forum
- Website: http://www.vicnet.net.au/~garyh/preemie_forum/
Preemie-Parents.com
- Description:
- A reading room to help you parent your preemie by the coauthor of Your Premature Baby and Child
- Website: http://www.PreemieParents.com
The Preemie Place
- Description:
- This site is for parents, families and friends of preemie kids. It's a place for sharing the trials, tribulations and joys of the issues and stories that surround prematurity. Somewhere to worry, ask, support, encourage and laugh.
- The Preemie Place has feature articles, family websites, selected reading, forums and more.
- Website: http://www.thepreemieplace.org/index.html
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E-mail Lists
Preemie-Child Mailing List
- Description:
- For parents of children born prematurely who are
now +4 years old
- Website:http://www.comeunity.com/premature/preemie-child/index.html
Preemie-L Mailing List
- Description:
- For parents and professionals of premature
infants
- Website:http://www.preemie-l.org/
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Preemie Clothes
BabyLinq
- Description: Babylinq.com, your "linq" to beautiful, soft baby NICU micro preemie clothes, preemie clothes, preemie accessories & preemie baby gifts, premature baby products, preemies diapers (diaper), maternity underwear, preterm labor, preemies hints, and preemies websites.
- Website: http://www.babylinq.com/
Connie's Kids
- Website: http://www.connieskids.com/
ML Preemie
- Website: http://www.preemiestore.com/
Newborns in Need, Inc.
- Website: http://www.newbornsinneed.org/
Tiny Little Clothes, Inc.
- Website: http://www.tinylittleclothes.com
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Sewing Patterns for Preemie Outfits
Charity Crafts (TheFamily.com)
- Website: http://www.thefamily.com/countrycottage/charity
Melinda's Patterns
- Website: http://members.aol.com/GORLEY/patterns.html
My Preemie
- Website: http://members.aol.com/mypreemiepattern/Page1.html
Tiny Little Clothes, Inc.
- Website: http://www.tinylittleclothes.com
Touching Little Lives, Inc.
- Description:
- We have a variety of preemie and newborn patterns on our website. We are an Ohio based charity organization for needy premature and newborn infants in Ohio.
- Website: http://www.touchinglittlelives.org
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Mary Foley
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