Twin/Multiple Specific

General

Twinslist.org FAQs

Twinslist.org Resources

Multiple Loss/Bereavement Resources

This FAQ includes links to resources that offer support to parents and family members who have experienced the death of one or all of a mutliple set. There are two main sections to this FAQ. One lists resources that are dedicated to supporting those who have experienced the loss of a twin, triplet or higher order multiple child, children, or sibling. The other is general bereavement resources. Whenever possible, resource descriptions have been quoted directly from the organization's main page.

If you have a site that you'd like to see listed here, send a description and url address to twinfaqs@yahoo.com for consideration.


Organizations

Center for Loss in Multiple Birth, Inc (CLIMB)

Description:
"By and for parents throughout the United States, Canada and beyond who have experienced the death of one or more, both or all their children during a twin, triplet or higher multiple pregnancy, at birth, or in infancy or childhood...and caring others"
Website: http://www.climb-support.org/
E-Mail:
To request a copy of the newsletter via postal mail, write newsletter@climb-support.org, including your complete mailing address, phone #, and brief information on your loss--one twin, both twins, or other)
Other mail, write: climb@pobox.alaska.net
Address:
CLIMB
c/oJean Kollantai
PO Box 91377
Anchorage, AK 99509
Phone:
(907) 222-5321

Mothers of SuperTwins (MOST)

Description:
"Mothers of Supertwins ( MOST) is an international non-profit support network of families with triplets and more." MOST has a resource page at http://www.mostonline.org/resources/index.htm that provides information regarding their information packets and volunteers.
Website:  http://www.mostonline.org
Email: Info@MOSTonline.org
Address:
PO Box 306
East Islip NY 11730
Phone 631-859-1110
Fax 631-859-3580
Phone
(516) 859-1110

Multiples Births Canada

(Formerly POMBA)
Description:
Multiple Births Canada offers support for parents who have lost one, more or all of their multiple birth children through their Loss of Multiples Registry.
Website: http://www.multiplebirthscanada.org
E-Mail: loss@multiplebirthscanada.org
Address:
Multiple Births Canada Business Office
PO Box 432
Wasaga Beach, ON
Canada L0L 2P0
Phone:(705) 429-0901
Toll Free in Canada: 1-866-228-8824

Murraylands Lutheran SISS

Description:
The Murraylands Lutheran SISS (Stillborn Infant Support Service) supports families who have lost a child either sometime during pregnancy, or shortly after birth, and is widely recognised for its work in twin loss. For further information please contact the Founder/Co-ordinator Lynne Schulz at the e-mail below or visit the following website.
Website: www.murraylandstwinloss.org.au
E-Mail: enquiries@nationaltwinloss.org.au

The Triplet Connection

Description:
"The Triplet Connection, a non-profit 501(c)(3), tax exempt organization for multiple-birth families. We provide vital information to families who are expecting triplets, quadruplets, quintuplets or more, as well as encouragement, resources, and networking opportunities for families who are parents of larger multiples."

The Triplet Connection has an information packet for bereaved parents titled Tender Hearts. It can be ordered for $10 (including shipping and handling) at http://tripletconnection.org/publicat.html

Website: http://tripletconnection.org
Email: tc@tripletconnection.org
Address:
c/o Janet Bleyl
PO Box 99571
Stockton, CA 95209
Phone: (209) 474-0885

Twinless Twins Support Group International

Description:
"Twinless Twins Support Group, International, was founded for one single purpose: To serve in support of twins (all multiple births) who suffer from the loss of companionship of their twin through death, estrangement, or in-utero loss."
Website: http://www.twinlesstwins.org
E-mail: contact@twinlesstwins.org
Address:
Twinless Twins Support Group International
PO Box 980481
Ypsilanti, MI 48198-0481
Phone: 1.888.205.8962

Table of Contents

Websites

Bereavement Support

Description:
Links to mail lists, web sites, newsgroups, etc.
Website: http://www.familyvillage.wisc.edu/lib_bere.htm

Loss In Multiple Birth Outreach (LIMBO)

Description:
Mail list for parents who have experienced the death of one or more of their multiple set
Website: http://www.geocities.com/Heartland/7479/limlst.html

Multiple Birth: Prenatal Education & Bereavement Support

Description:
Comprehensive and informative site for parents expecting twins, triplets or more and for parents whom have already had their children. Bereavement support for bereaved multiple birth families as well as surviving co-multiples. Articles for professionals and others with an interest in multiple birth issues.
Website: http://www.multiplebirthsfamilies.com/bereavement.html

Parents of Multiples Forever

Description:
For parents who have experienced the death or one twin or some of their triplets, quadruplets, quintuplets, etc
Website: http://www.erichad.com/pom/support.htm

A Twinless Twins Website (Twinless Twins Society of Canada)

Description:
This site is for twins that lost a twin(s) & parents of twins.
Website: http://www.members.home.com/bradstwin/

Table of Contents

E-Mail Lists

Loss of All in Multiple Birth Support (LAMBs)

Description:
LAMBs is a mailing list for people who have suffered a loss of multiples (twins, triplets, quadruplets or higher). This list is specifically for those who have lost all their children in a multiple birth, whether their loss is recent or years ago.
Subscription info:To subscribe to LAMBs, contact Cynthia at cjenks@iastate.edu -- Information about LAMBDads2, an e-mail list for the fathers, can be found at this same address.

Loss In Multiple Birth Outreach (LIMBO)

Description:
Mail list for parents who have experienced the death of one or more of their multiple set
Website: http://www.geocities.com/Heartland/7479/limlst.html
Subscription info:To subscribe to LIMBO, contact Terry at Terryc45@hotmail.com

Table of Contents

Message Boards

Parent's Place Message Boards

Description:
Numerous message boards for a large variety of parenting topics
Website: http://www.parentsplace.com/messageboards/
The section titled "Losses" has a board for Loss of a Twin

Table of Contents

General Bereavement Resources

Organizations -- General

Arizona SIDS Alliance

Address:
The Arizona SIDS Alliance
P.O. Box 1111
Phoenix, AZ 85001-1111
Phone: 1-800-597-7437
Website: http://www.azsids.org
E-mail: joanne@misschildren.org

Compassionate Friends

Description:
"The mission of The Compassionate Friends is to assist families in the positive resolution of grief following the death of a child and to provide information to help others be supportive.
"The Compassionate Friends is a national nonprofit, self-help support organization which offers friendship and understanding to families who are grieving the death of a child of any age, from any cause."
Address:
The Compassionate Friends, Inc.
P. O. Box 3696
Oak Brook, IL 60522-3696
Phone: 630-990-0010
Fax: FAX 630-990-0246
Website: http://www.compassionatefriends. org/

Hannah's Prayer

Description:
"Hannah's Prayer desires to provide Christian based support and encouragement to couples around the world who are struggling with the pain of 'fertility challenges' including infertility, pregnancy loss or early infant death."
Address:
Hannah's Prayer Ministries
P.O. Box 5016
Auburn, California 95604-5016
USA
Phone: (775)852-9202
Website: http://www.hannah.org/
E-Mail: Hannahs@Hannah.org

Houston's Aid In Neonatal Death (H.A.N.D.)

Description:
H.A.N.D. is a support group for parents whose babies have died any time from conception through late infancy. It helps parents cope with feelings of grief and isolation which accompany infant death.
Address:
H.A.N.D.
P.O. Box 20348
Houston, Texas 77225-0348
USA
Phone: (713) 529-4661 (This is an answering machine. Your call will be returned within 24 hours.)
Website: http://www.hern.org/~hand/
E-Mail: hand@hern.org

Mothers in Sympathy and Support (MISS)

Description:
"MISS provides support to parents enduring the tragedy of stillbirth, neonatal death and infant death from any cause including SIDS, congenital anomalies, trisomy 13. Grief education for parents and professionals is our main focus."
Website: http://www.misschildren.org/

Pen-Parents, Inc.

Description:
"Pen-Parents is an international non-profit support network for bereaved parents which works with any type of loss and any age child from miscarriage to the death of an adult child.
Website: http://www.penparents.org/

Stillbirth And Neonatal Death Support (SANDS)

Description:
"SANDS is a self-help support group comprised of parents who have experienced the death of a baby through miscarriage, stillbirth, or shortly after birth. SANDS provides immediate and ongoing support to bereaved parents, families and friends. Sharing with others who have had similar experiences can assist parents to work through the often intense grief which follows the death of a baby."
Website: http://www.sandsvic.org.au/
E-mail:sands@sandsvic.org.au
Address:
SANDS(Vic)
PO Box 302
Chelsea VIC 3196
Phone:
Support: (03) 9773 0221(intl +61 3)
Admin: (03) 9773 0228
Fax: (03) 9773 0226

SIDS Network, Inc.

Description:
Sudden Infant Death Syndrome and Other Infant Death (SIDS/OID) Information Web Site; "This site is the growing collaborative effort of individuals from across the United States and around the world. This sites offers up-to-date information as well as support for those who have been touched by the tragedy of SIDS/OID."
Website: http://sids-network.org
E-mail: sidsnet@sids-network.org
Address:
PO Box 520
Ledyard, CT 06339
Phone: 860-892-7042 x551 (voice mail)
Fax: 860-887-7309

Table of Contents

Websites -- General

Bruderhof Grief Companion

Description:
"Everyone grieves differently. But no one needs to carry grief alone. Whatever loss you are grieving, here you can share your loss with others, and find material that other grieving people have found helpful and comforting. Grieving takes time. Take time to grieve."
Website: http://www.griefcompanion.org/

Grief, Loss & Recovery -- Loss of a Child

Website: http://www.erichad.com/grief/grief2.htm

GROWW -- Grief Recovery ONLINE for ALL Bereaved

Description:
Chat rooms and message boards. The Heavenly Angels branch deals with loss of a child.
Website: http://www.groww.org/

Hygeia(tm) . . . An Online Journal for Pregnancy and Neonatal Loss

Description:
Support, info and links. Individual stories. Put together by Michael R. Berman, M.D.
Website: http://www.connix.com/~hygeia/

Missing Angels

Description:
Missing Angels is a site dedicated to all Missing Angels. A Missing Angels is a child that is no longer with us for a variety of reasons. This site includes informative articles, a message board and chat.
Website: http://groups.msn.com/MissingAngels

Waiting With Love

Description: For parents who choose to continue a pregnancy after learning their unborn baby will die before or shortly after birth and for parents who learn their newborn will die soon.
Website: http://www.erichad.com/wwl/

Table of Contents

E-Mail Lists -- General

Christian Pregnancy Loss Support (CPLS)

Description:
This group was formed to provide Christian support to women who have suffered from miscarriage, stillbirth or neonatal death or infertility (whether pregnant or not currently). The group offers spiritual comfort, solace, prayer and emotional support.
Subscription info: To join, send a brief bio to cpls@iname.com.
Website: http://www.geocities.com/Wel lesley/2458/

Pregnancy & Infant Loss Mailing List

Subscription info:In order to belong to the mailing list or to search its archives, send an e-mail to majordomo@taex001.tamu.edu
  1. Leave the subject line blank
  2. In the body of the message type: subscribe infanlos
  3. On the second line type: info infanlos
  4. On the third line type: end

SPALS (Subsequent Pregnancy After Loss Support)

Description:
SPALS is a warm and compassionate group of people who have experienced the loss of a child due to miscarriage, selective termination, stillbirth, neonatal death, sudden infant death, or accidental death.
Website: http://www.inforamp.net /~bfo/spals/index.html.
Subscription:
To join, send a blank e-mail to listmanager@lists.iSTAR.ca.
In the body of the message, type: subscribe SPALS
At the same time, prepare a short bio, containing only the facts of your situation (living and deceased children, your current status, your location in the form [country / state / city] and the mother's age) and email it to list administrator Sara Grimes at sgrimes@mail.coin.missouri.edu. Here is a sample of what they are looking for:
sgrimes@mail.coin.missouri.edu (Sara Grimes)
My first child, Haven Rose lived for 3 days (05-09-95 - 05-12-95), born at 23.5 weeks gestation because of severe preeclampsia and HELLP Syndrome. Currently pregnant -- due 08-22-96. Mom is 33.
[USA / Missouri / Columbia]

Table of Contents

Message Boards -- General

Grief and Loss Forum

Website: http://www.childbirth.org/bbs.html

Soc.Support.Pregnancy.Loss Information

Description:
Includes FAQ on Tips & Suggestions for Coping after Pregnancy Loss and the soc.support.pregnancy.loss charter. A medical FAQ is in the works.
Website: http://web.co.nz/~katef/sspl/

Table of Contents

Books for Children

Heaven's Brightest Star

Website: http://www.heavensbrighteststar.org/default.htm

Table of Contents

Twins List FAQs: http://www.twinslist.org   Copyright © Mary Foley
All Rights Reserved
Permission to reprint all FAQ information is granted to individuals for private use.
Please contact twinfaqs@yahoo.com regarding any other reprint permissions.

Back to Twinslist.org FAQs